Duchenne UK

About Duchenne UK

Two families a week in the UK are told that their sons have Duchenne Muscular Dystrophy, a devastating muscle wasting disease that mainly affects boys. We are investing millions of pounds in research right now to bring treatments and a cure and to help this generation of boys.

Duchenne Muscular Dystrophy is a devastating muscle wasting disease and is the most common genetic killer of children worldwide. There is no treatment or cure.

In the UK there are around 2,500 boys affected and around 300, 000 worldwide. Children will be totally paralysed by their teens and won’t live beyond their 20s. But thanks to recent breakthroughs, we believe we can save them.

We aim to eradicate it in 10 years: TO END DUCHENNE IN TEN.

In 2016 the parent led charity was formed by the coming together of Joining Jack and Duchenne Children’s Trust, the two biggest funders of research in the UK. The charity co-founders, Alex Johnson and Emily Crossley, met after their sons were diagnosed.

Duchenne UK is committed to continuing to drive momentum to deliver treatments to help this generation of those with Duchenne muscular dystrophy.

In 5 years we have spent £6.5m and committed £3.5m to fund and accelerate research.

For more information please visit our website.